An organization founded in 2001 at the disposal of people concerned by rare and very rare disorders .
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A disorder is called rare when affecting less than 1 in 2000 citizens. 75% affect children. Rare disorders are chronic, progressive and often life-threatening. More than 7000 diseases are known : 80% are of genetic origin. RDB is specially concerned with very rare disorders …less than 1 case in 10 or 25 000 …even less. |